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Showing posts from April, 2023

I'm in!

 It has been an exhausting few days, but well worth it.   It appears that Princess Margaret Hospital was granted 1 slot for the next group in this trial, and I was a match!  Everything lined up in such a way that it struck me as such an answer to prayer.  I had prayed for healing, obviously, but specifically for God to use me to demonstrate new ground breaking treatments for cancer (I prayed for this even before I knew my file was going to PMH). My doctor's referral and the new spot opening in the trial lined up perfectly.  I met with the team at PMH on Monday, got the 25PAGE consent form and was on my way.  This consent form is intense.  My best description is that it reads like a CNN comercial. Ian and I read through it and I spoke with the team yesterday... I'm in!!   I will be rceiving Dostarlimab and an additional experimental drug whose purpose is to enhance the effectiveness of the Dostarlimab.  It will be a lot of driving ba...

Travel, treatment failure and trials... oh my

  I have been meaning to write an update for quite a while… but I guess as things get harder to talk about, they also get harder to write about.  We had a fantastic trip to the UK last summer. It was everything I could have hoped for and more. Having never been overseas, the history that struck you at every turn was amazing. We had a wonderful time with great friends and made fabulous memories.  As suspected, when I returned, it was established that my treatment had failed and I was time to change course to a non-chemo treatment called Panatumumab (try saying that 10 times fast). I had been on this in 2018 and it brought about horrible skin side effects. I had been told that they had better premeds now and that they should be able to control it better. Unfortunately that didn’t pan out.  Within a week of my first infusion the skin on my face felt like it was on fire and I broke out in pustules. Shortly thereafter I felt flulike symptoms and had constant skin pain ov...